The last couple of posts have been about school and our education system and how that has led to me leaving teaching. Today, I want to share something more personal and that is my disability and how that affects my ability to work.
Close family and friends already know some of this stuff but bear with me for those that don't. In April 2012 I had a spinal cord injury. The lowest disc (L5/S1) prolapsed and sort of fell out into the bottom of my spine. At the bottom of the spinal column, the nerves spread out like a horse's tail and that group of nerves is called cauda equina. When the disc prolapsed, those cauda equina nerves got crushed. It can be on either side or both. For me it affected my left side. It should have been operated on immediately but for a whole number of reasons, I didn't get into surgery for many weeks and this left me with permanent nerve damage due to
cauda equina syndrome. At around the same time, the tremor that I'd had from childhood suddenly got worse. I suspect the two are connected but I can't be sure.
So how does all this affect me? The first thing to mention is pain. I seem to be getting a better deal than most in terms of pain levels. I have constant low level pain and stiffness in my lower back, almost like a nagging reminder to be careful. To keep this pain at a low level, I have to do physio (exercises and stretches, loosely based on Pilates) three times a day. I don't like taking painkillers unless I'm in agony because they dull the mind and make me sleepy. Exercise is the key to feeling as well as possible.
My left leg is numb from the thigh down to my foot, on the outside and back edge. Mostly, I feel nothing but that nothingness is interspersed with muscle cramps and shooting nerve pains. I also get 'imaginary' sensations, like a spider crawling up my leg or water pouring down my leg. The side of my foot is always cold and feels a bit like rigamortis has set in. This affects my mobility. I can walk but it's a bit variable, depending on how much I've overdone it the day before. I can't manage hills or uneven ground. My balance is rubbish and I fall over a lot. For those reasons, I usually walk with a stick, sometimes with crutches and for longer trips, I use a self-propelled wheelchair. I used to use a mobility scooter but then I couldn't walk at all. With a wheelchair, I can walk a bit and ride a bit.
If you follow the link above, you can read about some of the more embarrassing symptoms. The need to be near a loo at all times is the most bothersome, especially in a work context.
I don't have any photos of me in my wheelchair but Andy likes 'playing' in it and he's a stunning model!
So how does all this affect my ability to work? Let me start by saying that I am a very determined person. I was desperate to come back here, work as a teacher and prove that being disabled doesn't stop you doing a good job. It hurts beyond words that the combination of the job and my disability have defeated me. Having said that, I think that a different job would be totally manageable.
Let's quickly(ish) run through a day in school:
5:30 a.m. Get up, eat, drink coffee, do 20 minutes physio, shower, get dressed and ready. That takes about 90 minutes because I'm stiff and it's a bit slow getting going.
7:00 a.m. Short drive to walk (round the seafront - beautiful!) before getting the classroom ready. This is the best bit of the day unless tables need moving. Moving tables and chairs is very painful on the back.
8:40 a.m. Toilet visit. I know I don't stand a chance of making it through to break but everyday I hope I will.
8:45 a.m. Class starts. We generally do literacy first. I have 3rd set - low ability and need a lot of support. Actually this is a great lesson. I have to be interactive, dynamic, raise motivation, etc. but the children are lovely. Some of them bring baggage with them, so once they are working, I generally go and sit (on a hard plastic chair) to help them along a bit.
9:30 a.m. Start thinking about how and when I can make a dash for the toilet.
10:00 a.m. Might have left it too late but the toilet is right outside the head's office and he saw me yesterday (and the day before) and I'm embarrassed about the possibility that he might think I'm slacking. Gotta go though. Wish my stick didn't click with every step. It's like announcing my visit.
10:45 Break - ahhhh! Toilet break and a snack to keep the tremors down.
11:00 Maths - set 1 - very able. Mentally exciting lesson! My back is now beginning to ache quite badly from leaning over desks to help people, sitting on hard plastic chairs and holding 26 A4 books to give out. I should get someone else to do this but never seem to remember until afterwards.
12:00 Lunch. Generally I walk to the shop because it's the only flat walk I get without help. I go and buy a sandwich and cake from the bakers. Half way back, the cramps and shooting pains start but I know I can make it. I talk to myself, "Keep going. Nearly there. Walking, walking, just keep walking!" Ooops! Children are watching me talking to myself. Pull phone out and talk to that instead.
12:30 Eat lunch in my classroom (the staffroom is upstairs and I just can't be bothered with stairs) whilst talking to whichever child(ren) are having family/friendship/behaviour issues. Usually there's more than one! Dinnerladies start pouring in with complaints about that one (there's always one) who seems intent on ruining everyone's day.
1:00 p.m. Afternoon lessons begin. This is more stressful as I don't have a teaching assistant most afternoons, so I can't leave the room and it's 2 hours until home time. My legs and back are really aching now and I would love to lie flat. I'm thirsty but I daren't drink too much and my head is beginning to ache. Still, I keep smiling and try to be as positive as possible. Afternoon lessons can be really good fun but often need more physical activity. ICT is good because I can sit in a really comfy chair and wheel around to help the kids.
3:00 p.m. TOILET!!!
3:10 p.m. Marking books
3:30 p.m. Still marking books
4:00 p.m. More books
4:30 p.m. Go home and take the rest of the books with me.
4:45 p.m. I'll just mark some books while Josh cooks dinner.
6:00 p.m. Dinner - silently and otherwise I thank God for Josh being such a good cook.
6:30 p.m. Mark more books.
8:00 p.m. I'll just have a cuddle with Andy of the sofa before I finish the marking. Physio first because I've just realised I missed the afternoon session.
9:30 p.m Neil wakes me and sends me to bed.
And so the cycle continues. Week 1 of the term is manageable but by the end of term, I'm shattered! Adding in the inevitable child and/or parent who cannot see a teacher as a human being with feelings but treats you like dirt with aggression and threats, and it gets really tough.
Could I keep going? Yes, I could... but I don't know how long for.